Title

Activity Participation of Persons with Schizophrenia Living in the Community: An Exploratory Study Using Photovoice

Start Time

21-10-2011 2:55 PM

End Time

21-10-2011 3:25 PM

Session Type

Event

Abstract

Purpose: Although people with schizophrenia may experience psychiatric hospitalizations throughout the illness course, they spend most of their lifetime living in the community. Higher unemployment rates and boredom have been reported among community-dwelling individuals with schizophrenia. To assist these individuals in fulfilling a meaningful life in the community, this study explored the subjective experiences of activity participation of persons with schizophrenia who live in the community. Specifically, this study aimed to find out activity participation and participation restriction of community-dwelling individuals with schizophrenia, the influencing factors, and the impact on health and well-being.

Methods: This study used principals of community-based participatory research in conjunction with the photovoice method, which involves asking research participants to take pictures of lived community experiences. Participants of this study were recruited from two community mental health facilities in North Carolina with the following criteria: a DSM-IV diagnosis of schizophrenia or schizoaffective disorder, age between 18 and 65, living in the community at the time of study, capable to independently operate a camera used by this study, and capable to engage in conversations in group settings. Participants were asked to complete three photo assignments, each with a theme developed as a result of group decision and followed by a photo discussion group. The SHOWeD method was used to guide each photo discussion group. Group discussions were transcribed and the grounded theory approach was used to analyze the data. A feedback session was held with each group for member checking.

Results: Fourteen participants in five groups completed the study. Housing situations and transportation methods were found to greatly influence activity participation and participation restriction experienced by research participants, as well as their perceived satisfaction with life. It was also found that social support and sense of coherence contribute to better subjective well-being among some of the participants. Relations between study findings and existing literature will be examined, and a tentative theoretical structure will be proposed. The presentation will conclude with advantages, challenges, and recommendations for conducting photovoice studies with people with cognitive deficits.

Author’s Objectives for the Discussion Period:

  1. To elicit conversations about the advantage of using photos to facilitate verbal discussions for people with speech poverty due to cognitive deficits
  2. To elicit conversations about advantages as well as challenges of utilizing principles of community-based participatory research with participants with cognitive deficits

References

Israel, B. A., Eng, E., Schulz, A. J., & Parker, E. A. (Eds.). (2005). Methods in community-based participatory research for health. San Francisco: Jossey-Bass.

Strauss, A., & Corbin, J. (1998). Basics of qualitative research: Techniques and procedures for developing grounded theory (2nd ed.). Thousand Oaks, CA: Sage.

Wallerstein, N. (1994). Empowerment education applied to youth. In: A. C. Matiella (Ed.), Multicultural challenge in health education. Santa Cruz, CA: ETR Associates.

Wang, C. C., & Burris, M. A. (1997). Photovoice: Concept, methodology, and use for participatory needs assessment. Health Education and Behavior, 24, 369-387. http://dx.doi.org/10.1177/109019819702400309

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Research paper

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Oct 21st, 2:55 PM Oct 21st, 3:25 PM

Activity Participation of Persons with Schizophrenia Living in the Community: An Exploratory Study Using Photovoice

Purpose: Although people with schizophrenia may experience psychiatric hospitalizations throughout the illness course, they spend most of their lifetime living in the community. Higher unemployment rates and boredom have been reported among community-dwelling individuals with schizophrenia. To assist these individuals in fulfilling a meaningful life in the community, this study explored the subjective experiences of activity participation of persons with schizophrenia who live in the community. Specifically, this study aimed to find out activity participation and participation restriction of community-dwelling individuals with schizophrenia, the influencing factors, and the impact on health and well-being.

Methods: This study used principals of community-based participatory research in conjunction with the photovoice method, which involves asking research participants to take pictures of lived community experiences. Participants of this study were recruited from two community mental health facilities in North Carolina with the following criteria: a DSM-IV diagnosis of schizophrenia or schizoaffective disorder, age between 18 and 65, living in the community at the time of study, capable to independently operate a camera used by this study, and capable to engage in conversations in group settings. Participants were asked to complete three photo assignments, each with a theme developed as a result of group decision and followed by a photo discussion group. The SHOWeD method was used to guide each photo discussion group. Group discussions were transcribed and the grounded theory approach was used to analyze the data. A feedback session was held with each group for member checking.

Results: Fourteen participants in five groups completed the study. Housing situations and transportation methods were found to greatly influence activity participation and participation restriction experienced by research participants, as well as their perceived satisfaction with life. It was also found that social support and sense of coherence contribute to better subjective well-being among some of the participants. Relations between study findings and existing literature will be examined, and a tentative theoretical structure will be proposed. The presentation will conclude with advantages, challenges, and recommendations for conducting photovoice studies with people with cognitive deficits.

Author’s Objectives for the Discussion Period:

  1. To elicit conversations about the advantage of using photos to facilitate verbal discussions for people with speech poverty due to cognitive deficits
  2. To elicit conversations about advantages as well as challenges of utilizing principles of community-based participatory research with participants with cognitive deficits